I've noticed that the magic moments in life are only magical if they are framed and taken out of the greater context. For example, this photo of my daughter Hope and me captures a truly "Disneyland magical moment". Leaving sister Anna and Daddy on Main Street to nab a good viewing spot for fireworks, Hope and I raced to the back of Fantasyland to take in the "It's a Small World" ride. The day we had chosen to be at Disneyland happened to be the first day of the month-and-half long holiday season in the Magic Kingdom so Small World was decked out in holiday lights and featured some special outside shows while you wait. Our expected 25 minute wait was cut short when they opened a new loading line, allowing us to get right onto the coveted front seats after standing in line for only about 5 minutes. Yes! Hope had already been on this ride earlier in the day with her dad so her fear of the unknown had melted away and her enjoyment of the ride was exponentially greater. She jabbered on throughout the whole time guiding me through all of her favorite parts. (It turned out that every room was her favorite room.) As we snuggled together and took in the sights, Hope sighed and said, "I love you, Mommy." It was a scene straight out of parenting heaven or a Disney advertisement.
Soon after we exited Small World, the fireworks started. We watched them from where we were, which was not a bad location, although not the supremely desired "right in front of Sleeping Beauty's castle" spot. It was Hope's first time actually seeing live fireworks as we've never let our kids stay up long enough to watch them in July. They were pretty marvelous to behold, filling us with a sense of awe, beauty, power and just the right amount of fear, sort of like a really good experience of God. As the fireworks show came to an end, the Small World mall starts to "snow" little snowflakes made of some sort of soap-like substance as the song "White Christmas" and the sound of jingle bells were heard throughout the park. Hope was absolutely elated, her delight expressing itself in a twirly dance as she caught the little white bits of joy her hands.
Magical, right?
Yes, except for the fact that a few hours before this magic moment, I almost threw up in the midst of an everlasting, claustrophobic line of people at the Jungle Cruise attraction and had to lay on a bench on Main Street in the fetal position for 2 hours while Alex and the girls went around together. Alex, Hope, and Anna had had a bout of stomach flu or food poisoning a few days before our trip and, while it looked like they had completely recovered (enough to down several hand dipped corn dogs each), I feared that maybe it was my turn to have a tummy problem.
Disneyland is not for the faint of heart. It seems that moments of irritation, being overwhelmed and snapping at the ones you love are givens at some point in a long day in the Magic Kingdom. During my fetal position rest time, I overheard many a parent completely losing it on their beloved children. I heard many a child having complete thermonuclear meltdowns even though they had been given $15 balloons to hold and larger than life sugar-based snacks. Disneyland may be called "the happiest place on earth" but it's also a place where the dark side of the human heart leeks out at some point or another. We were not immune to that reality.
And the clincher was getting a text message while I was watching Hope dance in the manufactured snow from Josh's caregiver (back at home) that Josh was spiking a fever. Subsequent texts and phone calls confirmed that not only did he have a fever but he was throwing up as well. As I've written in previous blogposts, this can mean emergency hospitalization for Josh if he is not able to keep his meds down. I immediately knew that it was not an option to let my carefully organized "Josh care team" deal with this level of complexity without me there so I caught the first flight that I could and returned home the next morning. I left Alex to shepherd the girls through the second day of our Disney adventure.
A part of me is tempted to say to God, "Really? It seemed like such a good thing to take this vacation with just the girls. I thought through this trip from about a billion angles. I spent about 50 hours prepping for this trip. There are seven pages of instructions that I typed out and posted on my fridge for people to use as they take care of Josh. Of all of the days that Josh could have a fever and throw up, he has to do it at the end of our first of two days at Disneyland?"
But you know what helped my heart? I came home to this.
My deep thought of the day is that if you want to experience joy and wonder, you can't expect it to come on a full day of complete perfection and happiness. You have to accept that it will be a 3-7 minute snapshot in the midst of the realities of normal life. It will be a twirly dance in magical snow an hour after laying on a bench in the fetal position and a few minutes before hearing that your other child is seriously ill and you need to get your butt onto the next flight home. That's how most moments of joy comes in this world, in small packages. If you focus on the negative stuff, you will never savor the good stuff.
I don't know the full meaning of why our vacation went the way it did but I do know this: I love this boy and I would do anything for him. I'm glad that I came home and we are having a quiet, restful day together. The fever and vomiting are gone but he's clearly tired and needy. I'm feeling tired and needy too and I'm not sure I would have been able to keep up with Alex and the girls on this second day given where my stomach is at. Snuggling with Josh on my bed is also a magic moment and it's the one I've been given for now.
sharing joy and other stuff about a boy with septo-optic dysplasia and autism.
Showing posts with label kids activities. Show all posts
Showing posts with label kids activities. Show all posts
Saturday, November 16, 2013
Friday, May 10, 2013
Enrichment and the Josh Factor
The other day, I was trying to schedule a playdate for my 7 year old daughter with a friend from her class at school. The conversation went like this:
"How about Monday?"
"Oh, Monday is Jenny's voice class rehearsal. She can't miss because she has a performance this weekend."
"And Tuesday?"
"Hmmm. Tuesday is Girl Scouts then skating . . . and I know that we both have Mandarin after school on Wednesday."
"How about if I drop her off after piano on Thursday?"
"Sorry, Hope's brother has autism therapy on Thursday."
"Darn, we have something on Friday afternoon this week. How about next week?"
I live in a community where many of the children are engaged in dizzying array of "enriching activities". The city in which I live is fairly affluent and filled with highly talented and educated people. We also attend a school where the majority of the parents are really involved in the school. The result of such realities is that parents are highly invested in the enrichment of their kids. It is not uncommon for children to have at least one enriching activity every day of the week.
Foreign languages, sports, social clubs, music lessons. These things often begin in kindergarten and only get more intense as kids grow older. By the later elementary or middle school years, many kids choose into a more high level, competitive version of their activity such as travel teams for sports or city orchestras. In order to get there by, say, age 10, the child has to begin those activities (with some amount of commitment and focus) by early elementary school. The other day, Hope said to me that she wanted to become like Gaby Douglass, her hero. I had the cynical (though unspoken) thought, "It's too late for you, kid. You're already in first grade and you don't even take gynmastics lessons."
I'm definitely not immune to the temptation and the allure of lots of enriching activities for my kids. Who doesn't want their child to be multi-talented and super skilled? Besides, music, sports, languages . . . these are good for brain development and emotional health, right?
Yes, but the result can be a culture of very entitled and exhausted kids.
The other day, I heard one kid from my daughter's class say with a sad frown on his face, "I don't want to do basketball and baseball. I'm doing too many sports." We've all heard about kids who have acquired a lot of skills but haven't had the time to just lay around, be bored, and be forced to be creative.
The reality is that Joshua simply cannot handle a complicated schedule. I have tried dragging Josh along to take the girls to mid-week swimming or gymnastics lessons. Honestly, it's a gamble. There are days where he is relatively compliant (especially if I bring along plenty of snacks). However, there days when he will get completely upset and throw a huge tantrum in lobby of the YMCA. Or there was also the day at the library when we were taking too long so Josh went up to a random middle aged lady and slapped her on her bottom. (She was pissed and didn't speak enough English to understand my frantic explanation.)
Josh also has more than his share of doctors appointments, which the girls often have to come along for. Finally, Josh has autism therapy at home several afternoons a week which means that we can't leave the house.
So, the reality is that my girls do far fewer scheduled activities than most of their peers. They do not play piano. We have never gone ice skating. We choose one sport a year. There have been many days where I feel very guilty about this. However, today, I am realizing that this is a blessing. The highlight of our afternoon today was sitting around and eating popsicles in our driveway. We greeted people who walked by and enjoyed watching Josh walk in circles. We read books and checked to see how our pumpkin seedlings are growing. Hope and Anna are very good at making up stories while playing with mud in the backyard. They also play games like "squashing up ladybugs to make jam" (a pretend game). It's not super duper "enriching" but I'm trusting that this is the reality of the life that God has given to us and it's good.
Labels:
creativity,
enrichment,
kids activities,
scheduling
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