It's a bittersweet thing to hear that. He's modeling for his little girls a belief in and a hope for miracles. I don't do that. I pray that Josh would use his words more and that he would complete his potty training. When I am alone, I pray for other things that I am desperate for, like that he would stop playing with himself in public places. But I don't pray for a complete healing. I just don't have the faith to even ask for that. But I am touched when other people do.
sharing joy and other stuff about a boy with septo-optic dysplasia and autism.
Sunday, June 12, 2011
Evening Prayers
Hope and Anna are growing up with so many things being "normal". Praying for very real, up close miracles. Watching TV, oblivious while their older brother screams his head off under a big blanket right next to them. To them, their brother is their brother. The only brother that they have ever known. It's so amazing to me how much of their reality is shaped by what goes on in this house, in this household. I hope, with all my heart, that the imperfect love and the mustard seed of faith that we have and that we model to them is enough to give them a good start on a good life.
Saturday, June 4, 2011
Joshua Learning How to Use His Words
What’s that called
when you have no idea
that the person you are talking to
doesn’t know what’s in your head?
Joshua’s ever recurring statement
with no subject,
“I want it”
like everything with this kid
happens over and over again.
“I want it”
“I want it”
“I want some”
Repetition, perseveration
echolalia.
His response to, “Hi Joshua”
is “Hi Joshua”.
But today comes a surprise connection,
like the sun coming out in a constantly cloudy place.
At the end of an eternal effort
my beautiful son
decides to tell me what he wants
using his words.
“I want Barney video.”
I run to turn it on for him.
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