Thursday, March 31, 2022

Mother/Son Vacation

I said that we would just check it out, just take a quick look because by the time we had checked into the hotel and settled into our room, it was late afternoon and much too chilly to swim.  It was even colder than the weather report predicted and I had only brought thin sweatshirts for each of us.  But Josh kept saying, "Wanna go home" so I needed to put some more motivators on the table.  I wanted him to be ok with this quick little mother/son trip that I had brought him on.  So instead of going straight to the car to go get some dinner, we made a brief little side trip to just go look at the outdoor pool and hot tub area.

We rounded the corner and I used my key card to get us into the tiny fenced in area where the pool and little hot tub was. Josh took a good look around and, as he took it in, his visage completely changed, as if he was being greeted by a long lost friend.  The silly-sweet smile that oozed across his face said, "I know what this is! This is something I like!"

When I told him that he could dip a toe into the hot tub, he flung off his Crocs off and plopped his foot into the bathtub-like water.  I could tell by his body language that we weren't going to go straight to dinner.  

"Wanna go in?" It was half question and half declaration.  This kid wanted to go in the hot tub, cold windy weather be damned.  He walked right in with his shorts and underwear on.  I barely had time to take off his shirt and sweatshirt.  Josh spent the next hour enjoying the hot tub.  As he usually does when he's happy, he swing his arms around, sang little bits of songs, and exclaimed words which he made up like "Wash-weh!" and "stuck-tidit".

Well, this is why I decided to take three days and two nights away with Josh.  This week is Josh's spring break but not his sisters'.  Since I am on sabbatical, I somehow came up with the idea of having a mother/son getaway somewhere with a pool.  I chose Salinas because I have been wanting to visit the National Steinbeck Museum which is there and it would be easy to find a decently priced hotel where Josh could swim and enjoy water.

On our second day here we partook in the free breakfast and made our way to the Steinbeck Museum.  I had some amount of trepidation knowing that there was a wide spectrum of ways that this could turn out spanning from massive meltdown to going pretty ok.  After all these years, I know that taking Josh out to public places is always a risk but it's a risk that I am willing to take now and then.  Yes, there is always the chance that he will be walking along and suddenly decide to take a pee into a bush or suddenly get upset but I don't want Josh to live in his room all the time when he's not at school.  And I don't want to feel like I can never do anything interesting just because I have Josh in my life.  

The visit to the museum turned out to be surprisingly successful.  Josh spent a good part of the time by himself in a small, fenced in outdoor area within the museum with his headphones, Ipod and his Magnadoodle.  I would take in one or two exhibits and then walk back to check in on him.  He was fine the whole time, sometimes taking a few moments to walk in circles and feel the breeze on his face.  For the last 30 minutes, I made Josh walk through the exhibit room with me which he was less than thrilled about but was willing to do.  




After lunch Josh and I went down to the pool area where Josh elected to go into the big pool this time and I need to tell you that Josh was happy THE WHOLE TIME!  As parents, our children's joy catalyses our own joy.  It's not the only thing that we want for them but when our kids are filled with happiness and contentment, it touches a deep, central part of our hearts.  We want our kids to be able to enjoy the gifts that life (and we) give to them.  We want them to be happy.  

I find myself wondering if God feels this way about us.  I wonder if God, as a heavenly parent, wants me to enjoy my life, the world, and each moment as much as Josh does.  Does it give God joy when I savor some part of my day or a beautiful piece of writing or a perfect Korean meal? Does my smile make God smile? Is my laughter music to God's ears?  If so, I am going to try to let myself enjoy the things that I enjoy more.  I think of how freely and unselfconsciously Josh enjoys the pool and I will try to be like him.  I hope that my joy, and my grateful enjoyment of God's good gifts to me, is as pleasing to God as Josh's joy is to me.  



For nearly 4 hours I breathed in my son's sweet joy.  He swam around, jumped up and down, flapped his arms, floated on his back and stood quietly in the water with his eyes closed and face to the sky.  Every time I asked him if we should go back up to our hotel room he vehemently declared, "No!"  Finally I had to bribe him to come out with a piece of chocolate that I found in my purse.  We made our way upstairs to discover that Josh thought that the bathtub in our room was just the coolest.  He took a bath for another hour and half.  

Sunday, February 27, 2022

Why Does This Woman Get to Influence My Son?



"I think it was from a song by Doja Cat."  Josh's respite care provider hesitatingly let me know that their weekly trip to Trader Joe's did not go as smoothly as it usually did this week.  Apparently, they had to wait outside for a while because Josh was repeatedly singing a phrase from a song which had a bad word in it, a word which he should not be singing indoors while grocery shopping on a busy Sunday afternoon.

"Oh no!" I said to her.  "Was it the F-word?"

I had heard Josh saying something that sounded like the F-word the other day.  You can't always tell because he pronounces certain words in odd ways.  For example, one of his favorite words to say is 'vacuum'.  Unfortunately, it usually sounds like 'f***-um'.  So it can be tricky, you know?

"No, it was worse.  It was the N-word."

My hands flew up to my face in distress. "What?! How does he know that word?" 

Ariana, Josh's caregiver, is a young twenty something who listens to a wide range of music.  Apparently she was familiar with the very song from which Josh was quoting or singing given the phrase which apparently was stuck in my sweet son's head.  

"Why is this person saying the N-word in a song?!" I demanded, more than annoyed that such influence had reached my innocent boy.  

"Mom." My 16 year old daughter had come out of her room to see what the commotion was all about.  "She's black.  She gets to use the word. And she's a rapper."

I could tell from her tone that my daughter kinda couldn't believe that I didn't know who Doja Cat was.  (And I know who she is . . . I just didn't know that she was black or a rapper or, okay, really anything about her but I have heard that name before.)

But Hope was sympathetic to our conundrum.  How do we help a kid like Josh to understand that there are things that you can't say out loud, even if you are happy, even if you are singing, and even if someone else says it, even if it's stuck in your head?

The thing is, Josh has no idea what a "bad word" is.  He doesn't swear or curse or use profane words or images to express that he's angry or cool or sexy.  He does not use words or sarcasm or gossip to hurt people. He does not know how to objectify his own or other people's bodies.  He has no idea that the simple use of certain words said by certain people at certain times reminds the hearers about how language was one of the tools which were used to horrifically oppress an entire group of people in the history of this country and has echos even now.

He just picks up sounds and phrases and repeats them because they sound good to him.  He's just as likely to repeat a phrase from Elmo or the Wiggles as Doja Cat or Kanye/Ye.

As sad as this is, today this reality brings me comfort because Josh's intellectual disability protects him from a having his heart be influenced by the profanity and the negative influence of certain words and phrases in the world around him.  He is not going to learn to think about precious things like sex, our bodies, God, our promises flippantly.  He doesn't know how to say one thing but mean or do another.  He doesn't use words as a weapon.  In this way, Josh is freer than some of the other teens that I know and love.

Now if I can only figure out how to keep him from using the N-word at Trader Joes.