We are not a high fashion family. I mostly wear warm fleeces, jeans and clogs; sort of a uniform of a mom who is too tired and frenetic with the day's fat list of things to do to put much attention to her own fashion expression. My girls are downstream in a very abundant flow of hand me downs so I pretty much never buy them clothes save underwear and tights. Recently, I've been letting them pick out their own clothes which often results in some very (ahem) creative outfits usually encompassing a combination of orange, red and pink all at once.
But as I consider my ultra rapidly growing eleven year old boy who is completely dependent on me to determine all of his clothing choices, I wonder, "How important is it for a child with special needs to be well dressed?"
I am well aware that clothes can become an idolatry and a money pit. I am amazed and a bit appalled at how much money can be spent on children's clothing, clothing which will be outgrown or permanently stained in seconds. In our town we have a little mall which houses several boutique children's clothing stores. In one of them one can find a t-shirt for a 4 year old girl tie-dyed in pink and magenta with bling in the shape of Hello Kitty faces across the front for $59. I just don't get that.
However, I remember going to some sort of seminar years ago where a parent on a panel gave a grave warning which basically boiled down to this, "You're kid is going to look odd enough just for being who he is, don't let him look weirder by not paying attention to what he wears." I thought that this was an excellent point and have tried to remember this as the years have gone by. Therefore, I am most committed to spending money and attention on clothes for Josh of all of the people in our household.
I know other parents of kids with special needs whose kids have tactile sensitivities which force them to buy clothes from more expensive brands that have extra soft fabric and seamless clothing such as Hanna Anderssen, Soft Clothing or Sweet Lemonade. I think you have to do what you have to do and pay what you have to pay to get your kids to wear clothes that work for them. Thankfully, Josh's sensory challenges do not get expressed in this way. He's willing to wear just about anything that I have him put on.
Sadly, I have also observed kids in Josh's special education classes who have inappropriately fitting clothes or who smell because they have not bathed often enough. One special education teacher told me about a child who had been sent home in the same clothes and diaper that she came back in the next morning. I think that it's just too easy to disregard the appearance or personal hygiene of a child who is not aware of how he or she is being perceived by others or is not able to express what he or she needs. I get that given the tremendous amount of work to care for with meds, therapies, help with toileting etc. that our kids need, it's very easy to take short cuts when it comes to appearance and grooming but it's still important that we don't.
My main priority is that Josh's clothes are clean, well fitting and decently in style. I want to make sure that people take Josh seriously as he's out there in the world. I feel a little shallow saying this but I want his clothes to communicate that he is a person of great value, presence and dignity. I know that nice clothes to not make him so but I want others to remember the great worth of my son that might be masked by his disabilities.
What are your thoughts about kids with disabilities and appearance?